Carmel, IN, June 5 – Property Pros
Phelan-McDermid Syndrome is a rare genetic condition caused by a deletion on the terminal end of chromosome 22 in the region of 22q13. Symptoms of Phelan-McDermid vary but can include autism or autistic-like behavior, gastrointestinal issues, severe developmental delays, gross motor delays, inability to sweat, seizures, and speech delays/absent speech. There is no cure or treatment specifically for the condition.
Property Pros learned about this condition when our clients shared the story behind their landscape redesign plan. Their daughter, Cecilia, was diagnosed with Phelan-McDermid Syndrome, and they wanted to create an outdoor oasis that met her special, temperature regulating needs. After PPLM designer Tracy Cox delivered on their outdoor dreams, the Pros wanted to do more to support research for this cause. A sponsorship with our client’s non-profit, Cecilia’s Advice–named in honor of their daughter–was our next opportunity.
Our team is so happy that this first event was a success and looks forward to seeing more research and awareness of this rare condition come to fruition in years to come. The founder and president of Cecilia’s Advice, Ellie Bennett said, “We could not have asked for a better platinum sponsor. Josh and every single person at Property Pros is the absolute best. Love the team you guys have there. [They’re] always so positive and we need that in the world right now.”
The next event supporting the efforts of Cecilia’s advice will be held in 2023. Cecilia’s Advice, LLC is an Indiana-based 501c3 non-profit organization working to spread awareness of this rare chromosome deletion and raise funds for the Phelan-McDermid Syndrome Foundation. Explore more about Phelan-McDermid Syndrome here.